List of Rare Diseases | A-Z Database | NORD
What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease ontologies …
Financial Assistance For Patients With Rare Diseases | NORD
NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year. With the respite program, I was able to select a family friend who I trusted, who was already adequately …
Centers of Excellence - National Organization for Rare Disorders
NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being. Our belief is that the NORD Rare Disease Centers of …
About Us - National Organization for Rare Disorders
NORD was the first national nonprofit to represent all individuals and families affected by rare disease. Today we’re the only organization working at the intersection of care, research, policy, and …
Rare Disease Research Grant Program | NORD
Request for Proposals NORD’s Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and/or clinical research. The hope is that these studies ultimately …
Rare Disease Education - NORD® Learning
RareEDU®, NORD’s online learning environment, empowers people living with rare diseases and their families, patient advocates and other members of the rare disease community with online education …
Contact Us - National Organization for Rare Disorders
Contact Us NORD is leading the fight to improve the lives of patients with rare diseases. For more information or to learn more, use the contact details below or sign up for email communications here. …
Rare Disease News - National Organization for Rare Disorders
Dec 4, 2025 · Stay informed with the latest rare disease research, breakthrough treatments, and patient stories from NORD's expert team of medical professionals.
Patient Assistance Programs - National Organization for Rare Disorders
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial …
What You Should Know About Undiagnosed Rare Diseases | NORD
NORD strongly recommends discussing options to participate in research with your doctor. Research can help identify new diseases, expand our understanding of known diseases, and potentially …