The New England Journal of Medicine

Involving Palliative Care to Improve Outcomes in Sickle Cell Disease

Additional efforts are needed to improve quality of life and mitigate suffering in people with sickle cell disease. The field ...

Surprising gene mutation in brain's immune cells linked to increased Alzheimer's risk

In a study published in Neuron, a research team at the Department of Neurology at Massachusetts General Hospital, aimed to understand how immune cells of the brain, called microglia, contribute to ...

Long Island parents have baby whose bone marrow cures sister's sickle cell disease

Twenty-month-old Vida Rodriguez is the reason her 7-year-old sister, Alessia, is playing at home — instead of lying in a ...
FOX13 Memphis

Memphis sees higher rates of sickle cell disease than national average

MEMPHIS, Tenn. - September is Sickle Cell Awareness Month, and Memphis sits at the center of the crisis. The Mid-South has one of the highest rates of sickle cell disease in the nation, according to ...
WRBL

Columbus doctors turn to gene therapy for patients in continued fight against sickle cell disease

COLUMBUS, Ga. (WRBL) — September is Sickle Cell Awareness Month, and millions of people worldwide are living with the disease. But advances in treatment are being made. WRBL News 3 anchor Cameron ...
sicklecellanemianews

How I explain sickle beta-zero thalassemia to others

While I am not a board-certified hematologist, I am an expert on my personal experience with sickle beta-zero thalassemia. One might say I am “board-certified” in living with the condition! When I ...
South Bend Tribune

A lifesaving gift: supporting sickle cell patients through blood donation

September is Sickle Cell Awareness Month, highlighting the need for blood donations for those with the disease. Sickle cell disease is a genetic disorder causing red blood cells to block blood flow, ...
WPLG

South Florida teen becomes first in area to receive FDA-approved gene therapy for sickle cell

BROWARD COUNTY, Fla. — A South Florida family is happy their son no longer lives with chronic pain. Plus, he’s the first in the area to go through FDA-approved gene therapy. Caden Major had been ...
nation

Beyond survival: Ensuring adolescents with sickle cell disease can thrive

Two Saturdays ago, an amazing community turned up for a most fun football tournament; the sickle cell disease (SCD) community. The Utalii Sports Club hosted the Children Sickle Cell Foundation and its ...
kjrh.com

SICKLE CELL IN OKLAHOMA: 6,000+ living with disease

TULSA, Okla. — As the number of babies born with sickle cell increases, an Oklahoma non-profit is shedding light on the disease and the resources in our community. “People live in pain,” said Velvet ...
The Dallas Weekly

The Impact of African Genomes on Sickle Cell Disease Research

Dr. Ambroise Wonkam, director of the McKusick-Nathans Institute and Department of Genetic Medicine at the Johns Hopkins University School of Medicine, is dedicated to studying genetic and genomic ...