Columnist Connie Chandler shares how a caregiver-patient relationship evolved into a friendship, where both women provide ...

Columnist Brianna Albers tends to make mountains out of molehills, a sure sign that living with SMA has resulted in illness anxiety.

In an interview-based study, adults with SMA reported a lack of coordination during their transition from pediatric care once ...

Columnist Connie Chandler writes of a generational disconnect with new SMA patients, but says living fully must remain their ...

Columnist Helen Baldwin worried the baby who arrived May 18, 1997, would keep everyone awake, but his silence signaled a ...

SMA Europe has launched an online tool designed to help patients, doctors, and others in the spinal muscular atrophy (SMA) ...

The exergame Tales from the Magic Keep aims to boost physical activity, and proved to be a feasible tool for children with ...

For people with spinal muscular atrophy, physical therapy can help support mobility, strength, and quality of life, regardless of SMA type.

Zolgensma, a first gene therapy for spinal muscular atrophy — and first for any chronic neurologic disease — is now an approved and potential “one-time” intravenous treatment for pre-symptomatic ...

In episode 153, host Kevin Schaefer talks with Annie Heathcote from Mazomanie, Wisconsin. Annie is a multi-business owner, social media… ...

Spinal muscular atrophy (SMA) is an inherited neurodegenerative disorder characterized by progressive muscle weakness. SMA patients do not produce enough of a protein called survival motor neuron (SMN ...